The CF Foundation is seeking input from the CF community on three areas of evolving care relating to the COVID-19 pandemic plus interest in future projects. The announcement from Community Voice follows.
The CF Foundation is recruiting for multiple projects to better understand the impacts of COVID-19 on the cystic fibrosis community. Please see below to learn about some of these opportunities and fill out the brief interest survey by Friday, July 17th to get involved.
Document Review Opportunity: Risk Assessment Tool
As the country reopens, the Foundation’s Communications Team is looking to get feedback via email on a potential risk assessment tool that will be used to help guide discussions between people with CF and their care teams on which activities they can return to based on their own risk tolerance and circumstances. Feedback gathered will be used to help determine whether this tool would be useful and how it can be improved.
Interview/Focus Group Opportunity: Risk Perception on Reopenings
The Communications Team is also hosting a series of focus groups and interviews to understand the CF community’s perceptions surrounding risk tolerance, priorities, and fears surrounding the country reopening. The insights gathered will help identify challenges the community faces, ideas on how to address them, and inform a future survey surrounding this topic.
Interview Opportunity: Telehealth Services
The Foundation’s Policy Team is hosting interviews to learn about community members’ experiences with telehealth during COVID-19, including from those who have not had telehealth experiences. The goal of these interviews is identify the benefits and barriers of telehealth for people with CF and their families and will help inform a future survey surrounding this topic.
Future COVID-19 Related Opportunities
There may be future opportunities to provide feedback on projects related to COVID-19. If you are interested in being contacted for these projects, please fill out the interest survey below.
If you have questions regarding these opportunities, please email [email protected].