Public Comment Opportunity on Value of Potential New Therapy
You have the opportunity to add your thoughts to research that will be provided to health care decision makers. Here’s the announcement distributed by Cystic Fibrosis Foundation.
ICER is currently seeking input from the CF Community through their patient open input questionnaire. This questionnaire serves to provide ICER with information such as:
- What it is like to have CF
- Benefits and challenges to modulator therapies
- What is important to people with CF and their families
- What are the challenges in accessing treatments
Unlike many surveys, this questionnaire asks for comments in your own words rather than multiple choice selections. While this may take more time, you are able to put your can highlight the issues of greatest importance to you.