Cystic Fibrosis Foundation is seeking input regarding genetic-based therapies. Here is the announcement from Community Voice:
The CF Foundation is conducting a survey to better understand the community’s perspective on genetic-based therapies consisting of mRNA therapy, gene-editing, and gene therapy. As research in this area increases, it is important that we hear from the community to better understand your perspectives and current knowledge of genetic based therapies as well as willingness to participate in genetic-based therapy clinical trials.
The CF Foundation is interested in hearing from all adults with CF and their families; particularly those with nonsense and rare mutations. Results from this survey will be used to better understand the community’s perspective and inform future genetic-based therapy research, clinical trials, and communications.
If you would like to participate in this anonymous, 6 – 8 minute survey, please click on the button below by Monday, December 28th at 11:59 p.m., ET.
Thank you for your time and consideration.
JP Clancy, MD
Vice President of Clinical Research
Cystic Fibrosis Foundation