CFF Community Voice issued a call for survey participation regarding post-transplant care. Here is their announcement.
In partnership with the CF Foundation, an international group of CF and transplant clinicians have begun work on determining best practice models of post-lung transplant CF care. To help this group learn from a broader audience about current practices, barriers, and ideal models of post-lung transplant CF care, please consider taking this anonymous, 10-15 minute survey by clicking on the button below by Monday, November 16th. The insights gathered will be used to inform the development of best practices around a shared model of post-transplant CF care.
If you know those within the CF community who have received or have experienced their loved one undergo lung transplantation and may be interested in this opportunity, please share this survey.
Additionally, if you have any questions about this opportunity, please contact [email protected]. Thank you for your time and consideration.
Erin Tallarico, RN
Clinical Director, Advanced Lung Disease Program
Cystic Fibrosis Foundation
Sarah Hempstead, MS
Practice Guidelines Manager
Cystic Fibrosis Foundation