The mental health aspects of CF do not get the same public exposure as the advances in medical treatments. Cystic Fibrosis Foundation is looking to prioritize research into mental health issues and is seeking public input. Here is the announcement from Community Voice of a survey on this topic:
The CF Foundation’s Clinical Trials team is collaborating with the Mental Health Advisory Committee to develop research priorities in mental health for people with CF and their caregivers. In preparation for two workshops dedicated to developing the key research priorities, this group is deploying two sister surveys to gain the perspectives of all key stakeholders: one geared towards people with CF and their caregivers and another for care providers, including CF Foundation staff. The goal of these surveys is to begin the framework for developing a mental health research priorities document to be included in the Foundation’s Key Priorities page as a resource to researchers and to guide in funding decisions based on priorities identified by the entire CF community.
If you are interested in participating in this opportunity, please click on the button below to take the 10 minute, anonymous survey by Monday, August 17th at 11:59 p.m., ET.
Thank you for your time and consideration. If you have any questions, please contact [email protected].
Best,
Dara Riva
Clinical Research Awards Director
Clinical Trials Team
Cystic Fibrosis Foundation
Clinical Research Awards Director
Clinical Trials Team
Cystic Fibrosis Foundation
Paula Lomas
Senior Clinical Communications Director
Mental Health Advisory Committee
Cystic Fibrosis Foundation
Senior Clinical Communications Director
Mental Health Advisory Committee
Cystic Fibrosis Foundation