Cystic Fibrosis Foundation is gather your views on health data. The survey also includes an opportunity to volunteer for a working group on the topic. Here is the announcement from CFF Community Voice:
The CF Foundation’s recent strategic plan highlighted the importance of high quality data and evidence to ensure that people with CF get the best possible health care.
As part of the work on this area of focus, we are deploying this survey to learn about:
As part of the work on this area of focus, we are deploying this survey to learn about:
-
-
-
- How your health data is shared with you in clinic and your preferences around data sharing
- Current practices for tracking your health at home and your willingness to share that data
- How you learn about CF and CF research and areas for improvement
-
-
Please consider taking this 4-6 minute survey by clicking the button below. Survey takers will also have the opportunity to apply for the Data Use & Evidence Generation Working Group which is actively involved in addressing this component of the strategic plan. The survey will close on Thursday, August 27th.
If you have questions about this opportunity, please email[email protected].
Thank you for your time and consideration.
Best,
Aliza Fink
Senior Director of Real World Research
Cystic Fibrosis Foundation
Thank you for your time and consideration.
Best,
Aliza Fink
Senior Director of Real World Research
Cystic Fibrosis Foundation