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Nov

The NACFC recap is here

Recordings of the three plenary sessions at the 2022 North American Cystic Fibrosis Conference are now available. Here is the announcement from the Cystic Fibrosis Foundation.

That’s a wrap on this year’s North American Cystic Fibrosis Conference! In case you missed it, we’re here to help get you up to speed on the highlights from this year’s conference. 

Plenary 1: Hope for All: Addressing the Needs of Those With Untreated CF Mutations 

As most people with cystic fibrosis who have two nonsense or other rare mutations cannot benefit from CFTR modulators, there is a critical need to develop treatments that target the underlying cause of their disease. Following plenary 1 of this year’s North American Cystic Fibrosis Conference, Caroline Starnes, an adult living with cystic fibrosis, shares her top takeaways. 

Read Caroline’s blog » 

Watch Plenary 1 on YouTube » 

Plenary 2: It Takes Everyone: Novel CF Therapeutics and Clinical Trial Strategy to Accelerate Our Mission 

We’ve made significant progress to advance therapies for people with cystic fibrosis over the past two decades, transforming the lives of many with the disease. However, there is still a critical need for innovative new therapies to treat the underlying cause of CF as well as the many complications of the disease. Following plenary 2 of this year’s North American Cystic Fibrosis Conference, Mel Kotlyar, an adult living with cystic fibrosis, shares his top takeaways. 

Read Mel’s blog » 

Watch Plenary 2 on YouTube » 

Plenary 3: Evolving With the Times: Staying Agile With a Diverse and Aging CF Patient Population 

People with cystic fibrosis living longer, healthier lives compel us to adapt how we partner with the CF community to provide quality CF care. Following the final plenary of this year’s North American Cystic Fibrosis Conference, Meagan Tenyer, an adult living with cystic fibrosis, shares her top takeaways. 

Read Meagan’s blog »  

Watch Plenary 3 on YouTube »

Looking for additional recordings? We’re on it. Most NACFC sessions, including plenaries, symposia, many discipline groups, and lunch and learns will be available on YouTube by November 21. 


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