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Jan

Trikafta Up Close and Personal

Of course, the CF community is all abuzz with the news about Trikafta. As with such significant advances, the focus is on the benefits and promising future. But there is more to the story.

That same thought occured to Kori Tolbert Doherty, the past president of CFFC. She wanted to investigate the full picture while she is clearing up some other issues that will allow her to be a user of Trikafta. Kori being Kori, however, she wanted to share her investigation with the broader CF community.

The result of curiosity plus caring produced a YouTube video in which she interviews three women about their Trikafta experiences. She chose people she knew but was careful in selecting acquaintances with different backgrounds and different CF histories. You can watch the video here:

Kori’s discussion partners are:

Julie Desch – Julie maintains the website Sick and Happy (http://www.sickandhappy.com) and has produces her own course, “Living Mindfully With Cystic Fibrosis.” She also volunteers extensively with Cystic Fibrosis Research, Inc. (CFRI) where she authors the Mindfulness column in the CF Roundtable  newsletter.

Somer Love – Somer created the web site Love to Breathe (http://www.lovetobreathe.com/). She is an active advocate in the CF community and regularly contributes posts to the Cystic Fibrosis Foundation blog.

Anne Governor – Anne is another local connection: she is a CFFC director. One of her claims to fame is her appearance on Good Morning America, but we know her as the loving mother of two beautiful girls.


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