Workshop Opportunity: STRC mHealth Workshop

Cystic Fibrosis Foundation Community Voice has issued the following call for volunteers to participate in a workshop looking at potential mHealth (mobile technology to achieve improved health goals) products. Here is their announcement.

Although there are many effective treatments for CF, people living with the disease often struggle to balance their lives with managing their daily care. The Success with Therapies Research Consortium (STRC) is a network within the CF Foundation that facilitates the clinical study of interventions to improve day-to-day adherence and CF self-management to optimize health outcomes and quality of life. To continue towards the mission of the STRC, and in response to a community survey in which the community highlighted interest in app and web-based solutions (mHealth) to assist in managing their care, we will be hosting a two-day virtual workshop to help identify a mHealth product for a future STRC study.

mHealth: mobile technology to achieve improved health goals

We are looking to include 6-8 CF community members to participate in the meeting virtually. We would like to include people with CF, parents, spouses, those not on modulators, and those who are underrepresented in the CF community. The workshop will take place on Thursday, April 29th and on Thursday, May 13th, 2021. If you are not able to make the live workshop, an opportunity for offline participation will be provided.

Participation in this workshop will include working with a multidisciplinary team including CF Foundation staff, clinicians, researchers, and other community members during the live workshop.

“This is a great opportunity to use your voice to impact a tool that has the potential to help our community a great deal. CF adults and families are the stakeholders whose opinions make a huge difference, but we’ll never impact change if we don’t take our seat at the table and share freely. I hope you’ll apply and offer your invaluable stakeholder perspective.”