Seven posts were made to the CFFC Facebook page during the week of 3/26-4/1/2023.
03/26/2023 – My career goals are finally possible, thanks to my new lungs – Even with the benefits from CFTR modulators, lung transplantation remains an important option for some.
03/27/2023 – CF Foundation Invests Up to $2 Million in Nanite Inc. to Explore a New Method to Deliver Genetic Therapies to the Lung – Gene therapy continues to be a focus of the search for treatments that produce benefits regardless of mutation.
03/28/2023 – AtbFinder kit helps MDs better pick antibiotics against P. aeruginosa – Finding the best antibiotics to treat an exacerbation can shorten hospital stays and improve outcomes. This study shows promise in speeding the selection of the right mix.
03/29/2023 – Following Your Dreams: Aileen Henderson and her education journey – This story is a bit dated (reference to Orkambi and Symdeko) but the idea of overcoming challenges to pursue your dreams is timeless.
03/30/2023 – Life Without Modulators Small Group Discussion – The latest advances in CF treatments do not benefit everyone equally. In recognition of this reality, the Cystic Fibrosis Foundation issued the invitation presented in the linked article.
03/31/2023 – Inside the lab with CF researcher Nicole – A personal peek at work inside a lab in the UK seeking better treatments (or prevention) of CF-related diabetes.
04/01/2023 – Lung Transplant Today – The Cystic Fibrosis Foundation has updated its discussion of lung transplantation to include a new lung allocation system that went in to affect on March 23rd.