National CF Organizations

Organizations with a national perspective have been established in many countries. These organizations maintain websites with comprehensive information with regular updates. We have provided links to English language sites with summaries of key components of those sites. (The CF Canada site offers its content in English and French.)

The Cystic Fibrosis Foundation (CFF) is a premier source of CF information. Their website has comprehensive information on every aspect of cystic fibrosis. Some of the significant sections are identified below with descriptions taken from those pages.

Cystic Fibrosis Canada is comparable to CFF for the CF community north of the US border. From their web site: “Cystic Fibrosis Canada is a leading organization with a central role engaging people living with cystic fibrosis, parents and caregivers, volunteers, researchers and healthcare professionals, government and donors. We work together to change lives through treatments, research, information and support.”

Cystic Fibrosis Trust is the CFF equivalent for the United Kingdom. They describe themselves as:“the charity uniting people to stop cystic fibrosis (CF). We fund vital research, improve care, speak out and race towards effective treatments for all. We won’t stop until everyone with cystic fibrosis can live without limits.” Cystic Fibrosis Trust as a wealth of in formation; two of the more unique features are highlighted below.

Cystic Fibrosis Ireland, like the other national organization has a variety information resources and a blog section.

Cystic Fibrosis Australia offers additional articles to further your research on the aspects of CF. This site has a brief, automated security check before the home page loads.