CFFC Facebook Posts Week of 7/14
Seven posts were made to the CFFC Facebook page during the week of 7/14-20/2024. 07/14/2024 – Gene-editing technology corrects common CF mutation in cells –
The other components of our Information resources connect you with static materials. The News component can be considered “current events.” Snapshots of the news posts are grouped by Facebook, Significant News, Clinical Trial Alerts and Announcements.
Summaries of CFFC Facebook posts are added to this site periodically for those who do not use Facebook. Our Facebook page offers daily (with a few missed dates) links to a wide array of news stories. Topics range from research news and CF-related science to personal stories and commentary. Announcements originating on this website may also be posted to Facebook.
Seven posts were made to the CFFC Facebook page during the week of 7/14-20/2024. 07/14/2024 – Gene-editing technology corrects common CF mutation in cells –
Six posts were made to the CFFC Facebook page during the week of 7/7-13/2024. 07/08/2024 – Scientists map how deadly bacteria evolved to become epidemic
Six posts were made to the CFFC Facebook page during the week of 6/30-7/6/2024. 06/30/2024 – Family Day 2024 Update – Your input for Family
Significant News
CFFC receives significant news through email or other sources not easily linked on Facebook. Other stories warrant broader discussion or provide new information resources.
CFFC Family Day is just around the corner (on the calendar and on the map). We look forward to strengthening the bond in the Rochester/Finger
We are a little more than a month away from CFFC Family Day 2024 at Wickham Farms. To help us finalize the plans for the
CFFC is pleased to announce important updates on two of our major programs. Family Day As previously announced, CFFC Family Education Day is returning to an in-person
Clinical Trial Alerts
The Cystic Fibrosis Foundation issues periodic clinical trial alerts that announce trial seeking enrollment or report results. The alerts include links to sources with more detailed information on the trial.
CFFC received a request to share information regarding a clinical trial investigating phage therapy for treating Pseudomonas aeruginosa. The request came from Pranita D. Tamma,
Cystic Fibrosis Foundation issued three clinical trial alerts on 01/19/2023: two enrolling, one results Study to evaluate VX-522 in adults 18 years and older with
Cystic Fibrosis Foundation issued the following clinical trial alerts in October: October 3, 2022 Study to evaluate the standardizing of treatment for pulmonary exacerbations in
Announcements
Some news items are time sensitive such as announcements of survey opportunities and upcoming events (like Education Day or the Living with CF Golf Tournament). These announcements may also be distributed on our Facebook page and through our email newsletter. These posts are archived after the due date or event has passed, so there may be no entries shown.
CFFC Family Day is just around the corner (on the calendar and on the map). We look forward to strengthening the bond in the Rochester/Finger Lakes CF community at Wickham
We are a little more than a month away from CFFC Family Day 2024 at Wickham Farms. To help us finalize the plans for the day, we are asking for
Happy 2024! Celebrate the end of summer, while raising funds for CFFC programs, by playing in the Living with CF Golf tournament. This year’s edition will be held on Saturday,