CFFC Facebook Posts Week of 5/4
Seven posts were made to the CFFC Facebook page during the week of 5/4-10/2025. 05/04/2025 – Kaftrio may help patients do more higher-intensity exercise: Study
The other components of our Information resources connect you with static materials. The News component can be considered “current events.” Snapshots of the news posts are grouped by Facebook, Significant News, Clinical Trial Alerts and Announcements.
Summaries of CFFC Facebook posts are added to this site periodically for those who do not use Facebook. Our Facebook page offers daily (with a few missed dates) links to a wide array of news stories. Topics range from research news and CF-related science to personal stories and commentary. Announcements originating on this website may also be posted to Facebook.
Seven posts were made to the CFFC Facebook page during the week of 5/4-10/2025. 05/04/2025 – Kaftrio may help patients do more higher-intensity exercise: Study
Seven posts were made to the CFFC Facebook page during the week of 4/27-5/3/2025. 04/27/2025 – Balancing My Career Aspirations and Growing Family With CF
Six posts were made to the CFFC Facebook page during the week of 4/20-26/2025. 04/20/2025 – Cystic Fibrosis: Evelyn’s Story – This story is a
Significant News
CFFC receives significant news through email or other sources not easily linked on Facebook. Other stories warrant broader discussion or provide new information resources.
Join CFFC on Saturday, September 13th for the Living with CF Golf Tournament. The event will again be held at the Southern Meadows Golf Club
“Community” is important to CFFC. We connect with the Rochester/Finger Lakes CF community virtually through our website, Facebook page and email list, but in person
The 45th Kit Taylor Memorial Lecture was a mix of the old and the new. The old: continuing the tradition of bringing a nationally recognized
Clinical Trial Alerts
The Cystic Fibrosis Foundation issues periodic clinical trial alerts that announce trial seeking enrollment or report results. The alerts include links to sources with more detailed information on the trial.
CFFC received a request to share information regarding a clinical trial investigating phage therapy for treating Pseudomonas aeruginosa. The request came from Pranita D. Tamma,
Cystic Fibrosis Foundation issued three clinical trial alerts on 01/19/2023: two enrolling, one results Study to evaluate VX-522 in adults 18 years and older with
Cystic Fibrosis Foundation issued the following clinical trial alerts in October: October 3, 2022 Study to evaluate the standardizing of treatment for pulmonary exacerbations in
Announcements
Some news items are time sensitive such as announcements of survey opportunities and upcoming events (like Education Day or the Living with CF Golf Tournament). These announcements may also be distributed on our Facebook page and through our email newsletter. These posts are archived after the due date or event has passed, so there may be no entries shown.
Join CFFC on Saturday, September 13th for the Living with CF Golf Tournament. The event will again be held at the Southern Meadows Golf Club in Rush. You can sign
“Community” is important to CFFC. We connect with the Rochester/Finger Lakes CF community virtually through our website, Facebook page and email list, but in person connections are also important. That’s
The annual Kit Taylor Memorial Lectureship, established in the memory of Kathryn Irene Taylor, will be held on April 22, 2025. The visiting lecturer this year will be Dr. Michael