CFFC Facebook Posts Week of 5/28
Seven posts were made to the CFFC Facebook page during the week of 5/28-6/3/2023. 05/28/2023 – How CF Has Impacted My Mental Health – May
The other components of our Information resources connect you with static materials. The News component can be considered “current events.” Snapshots of the news posts are grouped by Facebook, Significant News, Clinical Trial Alerts and Announcements.
Summaries of CFFC Facebook posts are added to this site periodically for those who do not use Facebook. Our Facebook page offers daily (with a few missed dates) links to a wide array of news stories. Topics range from research news and CF-related science to personal stories and commentary. Announcements originating on this website may also be posted to Facebook.
Seven posts were made to the CFFC Facebook page during the week of 5/28-6/3/2023. 05/28/2023 – How CF Has Impacted My Mental Health – May
Seven posts were made to the CFFC Facebook page during the week of 5/21-27/2023. 05/21/2023 – A day at a CF clinical trials centre –
Seven posts were made to the CFFC Facebook page during the week of 5/14-20/2023. 05/14/2023 – Help Define Education Day 2023 – CFFC is seeking
Significant News
CFFC receives significant news through email or other sources not easily linked on Facebook. Other stories warrant broader discussion or provide new information resources.
Now that the PGA Championship has moved out of town, we can turn our attention to the next big golf event in the area. The
CFFC annually presents Education Day to expand understanding of issues relevant to the CF community. It is important to us to choose topics that are
The 43rd Annual Kit Taylor Memorial Lecture continued the tradition of providing information on one aspect of CF care in a way to provoke thinking
Clinical Trial Alerts
The Cystic Fibrosis Foundation issues periodic clinical trial alerts that announce trial seeking enrollment or report results. The alerts include links to sources with more detailed information on the trial.
Cystic Fibrosis Foundation issued three clinical trial alerts on 01/19/2023: two enrolling, one results Study to evaluate VX-522 in adults 18 years and older with
Cystic Fibrosis Foundation issued the following clinical trial alerts in October: October 3, 2022 Study to evaluate the standardizing of treatment for pulmonary exacerbations in
The cystic Fibrosis Foundation issued the following clinical trial alerts in July. July 6, 2022 SHIP CT: Study of hypertonic saline in preschoolers Status: Completed
Announcements
Some news items are time sensitive such as announcements of survey opportunities and upcoming events (like Education Day or the Living with CF Golf Tournament). These announcements may also be distributed on our Facebook page and through our email newsletter. These posts are archived after the due date or event has passed, so there may be no entries shown.
The Cystic Fibrosis Foundation has released more details about NextBreath 2023. Here are some excerpts from the Foundation. NextBreath is an online two-day event for people with CF who are
Now that the PGA Championship has moved out of town, we can turn our attention to the next big golf event in the area. The CFFC Living with CF Golf
The latest advances in CF treatments do not benefit everyone equally. In recognition of this reality, the Cystic Fibrosis Foundation issued the following invitation. While many are celebrating the progression