News

The other components of our Information resources connect you with static materials. The News component can be considered “current events.” Snapshots of the news posts are grouped by Facebook, Significant News, Clinical Trial Alerts and Announcements.

Facebook

Summaries of CFFC Facebook posts are added to this site periodically for those who do not use Facebook. Our Facebook page offers daily (with a few missed dates) links to a wide array of news stories. Topics range from research news and CF-related science to personal stories and commentary. Announcements originating on this website may also be posted to Facebook.

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Significant News

CFFC receives significant news through email or other sources not easily linked on Facebook. Other stories warrant broader discussion or provide new information resources.

Listening Opportunities

In case you do not receive “Together: a Community Update” from the Cystic Fibrosis Foundation, we are sharing the announcement of three virtual programs that

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Clinical Trial Alerts

The Cystic Fibrosis Foundation issues periodic clinical trial alerts that announce trial seeking enrollment or report results. The alerts include links to sources with more detailed information on the trial.

Announcements

Some news items are time sensitive such as announcements of survey opportunities and upcoming events (like Education Day or the Living with CF Golf Tournament). These announcements may also be distributed on our Facebook page and through our email newsletter. These posts are archived after the due date or event has passed, so there may be no entries shown.

Update on NextBreath 2023

The Cystic Fibrosis Foundation has released more details about NextBreath 2023.  Here are some excerpts from the Foundation. NextBreath is an online two-day event for people with CF who are

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