CFFC Facebook Posts Week of 11/23
Five posts were made to the CFFC Facebook page during the week of 11/23-29/2025. 11/23/2025– From the dark days of a CF diagnosis came newfound
The other components of our Information resources connect you with static materials. The News component can be considered “current events.” Snapshots of the news posts are grouped by Facebook, Significant News, Clinical Trial Alerts and Announcements.
Summaries of CFFC Facebook posts are added to this site periodically for those who do not use Facebook. Our Facebook page offers daily (with a few missed dates) links to a wide array of news stories. Topics range from research news and CF-related science to personal stories and commentary. Announcements originating on this website may also be posted to Facebook.
Five posts were made to the CFFC Facebook page during the week of 11/23-29/2025. 11/23/2025– From the dark days of a CF diagnosis came newfound
Five posts were made to the CFFC Facebook page during the week of 11/16-22/2025. 11/17/2025 – Goodbye cavities? This new toothpaste made from hair can
Seven posts were made to the CFFC Facebook page during the week of 11/9-15/2025. 11/09/2025 – Five things to know about living with CF diabetes
Significant News
CFFC receives significant news through email or other sources not easily linked on Facebook. Other stories warrant broader discussion or provide new information resources.
Delivery of CFFC’s holiday decor began right after Thanksgiving. The program is intended to bring a little happiness to the local CF community. Judging from
Pillar Patient Advocates is currently assisting with a paid research opportunity. The study is seeking adults diagnosed with Exocrine Pancreatic Insufficiency (EPI) who are currently taking
The offer is now closed. The days are growing shorter. Leaves are turning color. Halloween decorations are popping up. These signs are telling us that….
Clinical Trial Alerts
The Cystic Fibrosis Foundation issues periodic clinical trial alerts that announce trial seeking enrollment or report results. The alerts include links to sources with more detailed information on the trial.
CFFC received a request to share information regarding a clinical trial investigating phage therapy for treating Pseudomonas aeruginosa. The request came from Pranita D. Tamma,
Cystic Fibrosis Foundation issued three clinical trial alerts on 01/19/2023: two enrolling, one results Study to evaluate VX-522 in adults 18 years and older with
Cystic Fibrosis Foundation issued the following clinical trial alerts in October: October 3, 2022 Study to evaluate the standardizing of treatment for pulmonary exacerbations in
Announcements
Some news items are time sensitive such as announcements of survey opportunities and upcoming events (like Education Day or the Living with CF Golf Tournament). These announcements may also be distributed on our Facebook page and through our email newsletter. These posts are archived after the due date or event has passed, so there may be no entries shown.
Some people think “13” is unlucky; however, September 13 was a lucky day for CFFC and 44 supporters who showed up for the Living with CF Golf Tournament. It was
On August 3rd, the Cystic Fibrosis Family Connection (CFFC) welcomed around 40 guests – individuals living with CF, their families and friends – for a joyful and engaging event at
Looking for something fun to do while the weather permits outdoor activity? CFFC offers two events; one (or both) of which fit your schedule and preferences. CFFC Family Day Sunday