The other components of our Information resources connect you with static materials. The News component can be considered “current events.” Snapshots of the news posts are grouped by Facebook, Significant News, Clinical Trial Alerts and Announcements.


Summaries of CFFC Facebook posts are added to this site periodically for those who do not use Facebook. Our Facebook page offers daily (with a few missed dates) links to a wide array of news stories. Topics range from research news and CF-related science to personal stories and commentary. Announcements originating on this website may also be posted to Facebook.

No more posts to show

Significant News

CFFC receives significant news through email or other sources not easily linked on Facebook. Other stories warrant broader discussion or provide new information resources.

Add Your Voice to Advocacy

The Cystic Fibrosis Foundation is asking for our assistance in their advocacy for important programs. Read their announcement below including links for contacting your legislators.

Read More »

Clinical Trial Alerts

The Cystic Fibrosis Foundation issues periodic clinical trial alerts that announce trial seeking enrollment or report results. The alerts include links to sources with more detailed information on the trial.


Some news items are time sensitive such as announcements of survey opportunities and upcoming events (like Education Day or the Living with CF Golf Tournament). These announcements may also be distributed on our Facebook page and through our email newsletter. These posts are archived after the due date or event has passed, so there may be no entries shown.

Important News on Two CFFC Programs

CFFC is pleased to announce important updates on two of our major programs. Family Day As previously announced, CFFC Family Education Day is returning to an in-person event at Wickham Farms on

Read More »