CFFC Facebook Posts Week of 11/24
Six posts were made to the CFFC Facebook page during the week of 11/24-30/2024. 11/24/2024 – “I believe there is something powerful about turning a
The other components of our Information resources connect you with static materials. The News component can be considered “current events.” Snapshots of the news posts are grouped by Facebook, Significant News, Clinical Trial Alerts and Announcements.
Summaries of CFFC Facebook posts are added to this site periodically for those who do not use Facebook. Our Facebook page offers daily (with a few missed dates) links to a wide array of news stories. Topics range from research news and CF-related science to personal stories and commentary. Announcements originating on this website may also be posted to Facebook.
Six posts were made to the CFFC Facebook page during the week of 11/24-30/2024. 11/24/2024 – “I believe there is something powerful about turning a
Seven posts were made to the CFFC Facebook page during the week of 11/17-23/2024. 11/17/2024 – CF Can’t Stop Me from Living Boldly – While
Six posts were made to the CFFC Facebook page during the week of 11/10-16/2024. 11/10/2024 – “Our hope for our boys’ future is that CF
Significant News
CFFC receives significant news through email or other sources not easily linked on Facebook. Other stories warrant broader discussion or provide new information resources.
In May, CFFC revised our Hospital Help Program to change the way this benefit is provided to those who are dealing with hospitalization. We are
NOTE: The opportunity to order holiday decor has ended. Thank you to everyone who took advantage of this offer. You may have just put up
Previous Next On September 7th, Mother Nature and a rumored pagan sacrifice combined to provide a break in the weather for the 10th Living with
Clinical Trial Alerts
The Cystic Fibrosis Foundation issues periodic clinical trial alerts that announce trial seeking enrollment or report results. The alerts include links to sources with more detailed information on the trial.
CFFC received a request to share information regarding a clinical trial investigating phage therapy for treating Pseudomonas aeruginosa. The request came from Pranita D. Tamma,
Cystic Fibrosis Foundation issued three clinical trial alerts on 01/19/2023: two enrolling, one results Study to evaluate VX-522 in adults 18 years and older with
Cystic Fibrosis Foundation issued the following clinical trial alerts in October: October 3, 2022 Study to evaluate the standardizing of treatment for pulmonary exacerbations in
Announcements
Some news items are time sensitive such as announcements of survey opportunities and upcoming events (like Education Day or the Living with CF Golf Tournament). These announcements may also be distributed on our Facebook page and through our email newsletter. These posts are archived after the due date or event has passed, so there may be no entries shown.
Previous Next On September 7th, Mother Nature and a rumored pagan sacrifice combined to provide a break in the weather for the 10th Living with CF Golf Tournament. As you
Sunday August 4th was a bright, sunny day at Wickham Farms – a perfect setting for CFFC Family Day. 50 members of our CF community joined us for our first
CFFC Family Day is just around the corner (on the calendar and on the map). We look forward to strengthening the bond in the Rochester/Finger Lakes CF community at Wickham