CFFC Facebook Posts Week of 5/3
Seven posts were made to the CFFC Facebook page during the week of 5/3-9/2026. 05/03/2026 – The benefits of therapy in life with chronic illness
The other components of our Information resources connect you with static materials. The News component can be considered “current events.” Snapshots of the news posts are grouped by Facebook, Significant News, Clinical Trial Alerts and Announcements.
Summaries of CFFC Facebook posts are added to this site periodically for those who do not use Facebook. Our Facebook page offers daily (with a few missed dates) links to a wide array of news stories. Topics range from research news and CF-related science to personal stories and commentary. Announcements originating on this website may also be posted to Facebook.
Seven posts were made to the CFFC Facebook page during the week of 5/3-9/2026. 05/03/2026 – The benefits of therapy in life with chronic illness
Six posts were made to the CFFC Facebook page during the week of 4/26-5/2/2026. 04/26/2026– Inside the lab with Anaïs – This addition to the
Seven posts were made to the CFFC Facebook page during the week of 4/19-25/2026. 04/19/2026 – “I want to raise as much money as possible
Significant News
CFFC receives significant news through email or other sources not easily linked on Facebook. Other stories warrant broader discussion or provide new information resources.
May 16th was another opportunity for CFFC to partner with the Cystic Fibrosis Foundation to support our CF community. While the weather was perfect for
Please mark your calendars for (and participate in) these three events. Great Strides Rochester – May 16th – Great Strides is a major fundraiser for the
Our mission statement states: “CFFC is dedicated to supporting individuals with CF and their families in their daily journey with cystic fibrosis.” We can’t think
Clinical Trial Alerts
The Cystic Fibrosis Foundation issues periodic clinical trial alerts that announce trial seeking enrollment or report results. The alerts include links to sources with more detailed information on the trial.
CFFC received a request to share information regarding a clinical trial investigating phage therapy for treating Pseudomonas aeruginosa. The request came from Pranita D. Tamma,
Cystic Fibrosis Foundation issued three clinical trial alerts on 01/19/2023: two enrolling, one results Study to evaluate VX-522 in adults 18 years and older with
Cystic Fibrosis Foundation issued the following clinical trial alerts in October: October 3, 2022 Study to evaluate the standardizing of treatment for pulmonary exacerbations in
Announcements
Some news items are time sensitive such as announcements of survey opportunities and upcoming events (like Education Day or the Living with CF Golf Tournament). These announcements may also be distributed on our Facebook page and through our email newsletter. These posts are archived after the due date or event has passed, so there may be no entries shown.
Please mark your calendars for (and participate in) these three events. Great Strides Rochester – May 16th – Great Strides is a major fundraiser for the Cystic Fibrosis Foundation. CFFC is
Our mission statement states: “CFFC is dedicated to supporting individuals with CF and their families in their daily journey with cystic fibrosis.” We can’t think of a better way to
Here we go again – in a good way. CFFC is once again hosting the Living with CF Golf Tournament. This year’s event will be held on Saturday, September 12,