Seven posts were made to the CFFC Facebook page during the week of 4/2-8/2023.

04/02/2023How I found my voice as a cystic fibrosis parent – Parenting is full of emotions. Finding a way to manage – and harness – those emotions is important to maintaining mental health.

04/03/202310 Unexpected Realizations After Trikafta – We know a lot about the physical changes that Trikafta produces. This blogger reviews the other significant changes that come with it.

04/04/2023NIH funds research into key step of bacterial infection in CF – This is quite early in the development process, but the attention being given to better treatments for Burkholderia cepacia is promising.

04/05/2023“My sisters had an incredible zest for life”: Made in Chelsea’s James Dunmore – Losing a loved one is a traumatic experience. This interview touches on a coping strategy.

04/06/2023How at-home spirometry testing has helped me during the pandemic – Remote health care took a big jump with the pandemic. This blogger got better results at home versus the “pressure” of tests in the clinic.

04/07/2023What Living 16 Years Post-Transplant Has Taught Me – This blog is a reality check: transplantation does not change the intensity of treatment; it changes the focus. That said, this blogger

does not regret the choice.

04/08/2023Cystic Fibrosis Around the World – Brazil – This entry from Gunnar Esiason’s CF Around the World series is a bit dated but still interesting; particularly, the late (or non) diagnosis of CF in a country where CF is not widely recognized.