Seven posts were made to the CFFC Facebook page during the week of 4/2-8/2023.
04/02/2023 – How I found my voice as a cystic fibrosis parent – Parenting is full of emotions. Finding a way to manage – and harness – those emotions is important to maintaining mental health.
04/03/2023 – 10 Unexpected Realizations After Trikafta – We know a lot about the physical changes that Trikafta produces. This blogger reviews the other significant changes that come with it.
04/04/2023 – NIH funds research into key step of bacterial infection in CF – This is quite early in the development process, but the attention being given to better treatments for Burkholderia cepacia is promising.
04/05/2023 – “My sisters had an incredible zest for life”: Made in Chelsea’s James Dunmore – Losing a loved one is a traumatic experience. This interview touches on a coping strategy.
04/06/2023 – How at-home spirometry testing has helped me during the pandemic – Remote health care took a big jump with the pandemic. This blogger got better results at home versus the “pressure” of tests in the clinic.
04/07/2023 – What Living 16 Years Post-Transplant Has Taught Me – This blog is a reality check: transplantation does not change the intensity of treatment; it changes the focus. That said, this blogger
does not regret the choice.
04/08/2023 – Cystic Fibrosis Around the World – Brazil – This entry from Gunnar Esiason’s CF Around the World series is a bit dated but still interesting; particularly, the late (or non) diagnosis of CF in a country where CF is not widely recognized.