Six posts were made to the CFFC Facebook page during the week of 11/19-25/2023.
11/20/2023 – 6 Tips for A Successful School Year From a Counselor With CF – Although the school year is underway, it’s never to late to get tips on navigating school with CF.
11/21/2023 – Have Thoughts on CF Care – From the Cystic Fibrosis Foundation: “Have thoughts on CF Care? Living with CF can be very different for many people. Take the Adapting CF Care survey to share your thoughts on how CF Foundation care centers can better meet your or your loved ones’ needs. The survey, which takes 6 to 11 minutes, is available until December 20. Highlights from survey results will be shared in early 2024.
11/22/2023 – The other side of the window – Sarah’s visit to labs researching CF lung infections – A look at the ongoing work to find solutions for resistant bacteria.
11/23/2023 – Happy Thanksgiving – While we give thanks for all the advances that have improved the lives of people living with CF, we must continue to support the efforts to find alternatives for those who do not yet benefit from, or have access to, the currently available treatments.
11/24/2023 – Missed CF cases in New Jersey lead to expansion of newborn screening – This article focuses on the battle to improve newborn screening in New Jersey. It also highlights the difficulties in developing, and maintaining, reliable screening protocols.
11/25/2023 – Chanelle’s Journey with Cystic Fibrosis – Although this is ultimately a fund raising plea for Cystic Fibrosis Canada, the story is a reminder that we need to keep working to help those not currently benefiting from CFTR modulators.