Seven posts were made to the CFFC Facebook page during the week of 12/24-30/2023.
12/24/2023 – African American patients face lifetime of challenges living with CF – A small fraction of the US population live with CF. A small fraction of that small fraction are Black or African American. This study looked at the additional challenges faced by this segment of the CF community.
12/25/2023 – Cystic Fibrosis: Julia and Claire’s Story – Raising two children living with CF may seem like twice the work; however, this story shows how siblings can help each other carry the load.
12/26/2023 – Managing the costs of CF vary widely, are likely underestimated – In addition to the health challenges of CF, finances can be an additional burden. This article looks at the scope of those costs.
12/27/2023 – 2022-24 Research Impact Report – A brief update on research funded by Cystic Fibrosis Canada.
12/28/2023 – Five research highlights from 2023 – Following yesterday’s theme, here is a research report from the UK. The list includes genetic therapies which links to an expanded resource on this aspect of research.
12/29/2023 – Works by the CF Community: Winter 2023 – The Cystic Fibrosis Foundation shares the products of five members of the CF community sharing their perspecitves in different ways.
12/30/2023 – How we have a social life while protecting our child with CF – The holiday season is full of social opportunities. This blog describes one family’s approach to managing the rsik of social participation.