Seven posts were made to the CFFC Facebook page during the week of 5/12-18/2024.
05/12/2024 – Happy Mothers’ Day! – These links are a repeat posts but they seem appropriate for today. One honors the bond between mothers of children with CF and the second acknowledges the increasing number of moms with CF.
https://www.cff.org/community-posts/2024-03/dear-moms-children-cf
https://www.cff.org/community-posts/2023-08/understanding-intersection-parenthood-and-cf
05/13/2024 – Azithromycin reduces airway wall thickness in infants: Study – Sometimes antibiotics (or other treatments) have benefits in addition to their primary purpose.
05/14/2024 – Senior Clinical Psychologist Dr Anna Elderton shares her top tips for a successful transition to adult care – Becoming an adult produces many new experiences. This article offers some suggestions for reducing the added anxieties related to moving CF care from pediatric to adult.
05/15/2024 – CF bacterial infections usually persist after Trikafta is started – This study demonstrates that, despite all the benefits attributed to Trikafta, the CFTR modulator does not solve all the issues associated with CF.
05/16/2024 – Advocating for Health Equity in Cystic Fibrosis – The challenges presented by CF are not just physical; there are social challenges as well. This discussion by Dr. Jennifer Taylor-Cousar describes the effort to make CF care fully inclusive.
05/17/2024 – Newborn screening: Limited grasp of results, lack of support reported – Screening newborns for CF (and other conditions) is considered a key to long-term success through early intervention; however, the benefit may not be achieved if families do not understand the purpose or results.
05/18/2024 – Vanessa (Ness) Tulenew – Community Advisory Committee Member – This story relates to Cystic Fibrosis Queensland, but it is a story about how CF can inspire involvement in programs to benefit the CF community.