Seven posts were made to the CFFC Facebook page during the week of 5/26-6/1/2024.
05/26/2024 – Swiss newborn screening spots CF in 96% of cases across 11 years – Yesterday’s post told the story of delayed diagnosis. This article reports on the study of early screening results in Switzerland.
05/27/2024 – My Long Journey to a CF Diagnosis – Continuing a theme, here is another story of a person who endured years of CF symptoms before finally being diagnosed – and learning she was eligible for Trikafta.
05/28/2024 – Forward Together: A Report on Cystic Fibrosis Canada’s Impact in 2023-24 – The annual report from Cystic Fibrosis Canada reminds us that the efforts to address the challenges of life with CF are under way all around the world.
05/29/2024 – Meet Jessica Caesar – Community Advisory Committee Member – Another adult living with CF working with CF Queensland. Her motto can be an inspiration for others: “my cystic fibrosis was never going to be an excuse for me not trying something new.”
05/30/2024 – Editing without ‘cutting’: Molecular mechanisms of new gene-editing tool revealed – While some of the text is a little dense, this article describes an advance in gene therapy that could be applied to CF.
05/31/2024 – Learning How to Live on a Fixed Income – Not all CF “symptoms” relate to physical and mental health. CF impacts all phases of life and can involve “treatments” like budgeting.
06/01/2024 – Neutrophils are associated with better lung function in CF: Study – This study identified differences in the body’s immune response between people living with CF and others without CF. The analysis may lead to better treatments for infections.