Six posts were made to the CFFC Facebook page during the week of 7/7-13/2024.
07/08/2024 – Scientists map how deadly bacteria evolved to become epidemic – No “solutions” were developed by this research, but it provides insight on the evolution of Pseudomonas aeruginosa into a problematic bacteria.
07/09/2024 – Why We Took Our Son Off Trikafta – This story is an important reminder that: (1) there is no single CF; it is a unique experience for each individual, and (2) even “miracle drugs” have side effects that temper the miracle.
07/10/2024 – Five ways the CF BioResource project could help people with CF – The UK’s National Institute for Health and Care Research is building a registry for CF genetic information to aid in research and treatment development.
07/11/2024 – Gardening cultivates fresh perspectives on my own growth – Sometimes, a hobby offers more than a pastime; it may provide an opportunity to learn more about yourself.
07/12/2024 – Disaster and Emergency Preparedness Plan – People living with chronic disease have a more complex emergency preparedness. The recent severe weather is a prompt for sharing this guide from the Cystic Fibrosis Foundation.
07/13/2024 – New guidelines for UK cystic fibrosis clinical psychologists published – The UK’s Cystic Fibrosis Trust has developed explicit guidance for incorporating mental health care in the CF care team.