Six posts were made to the CFFC Facebook page during the week of 12/22-28/2024.
12/22/2024 – Why Taking Care of Myself Is the Best Thing I Can Do for My Daughter – Have you heard the safety advisory at the beginning of an airplane flight? “In case of an emergency, put on your oxygen mask before helping others.” As this mom explains, the same rule applies to caring for someone with CF.
12/23/2024 – Anxiety, depression in children with CF may ease with Trikafta – Some adults living with CF have reported “brain fog” or other mental health symptoms associated with Trikafta use. This study found improvements in mental health with younger participants.
12/24/2024 – Unexpected Moments – The Trikafta Journey – This article from South Africa is a group of stories that portray the variety of experiences that people living with CF have with Trikafta.
12/25/2024 – Happy Holidays – Wishing everyone a happy holiday season.
12/26/2024 – Nasal microbiome altered in CF infants, new study discovers – This study suggests a strategy for better management (avoidance?) of infections in infants which, in turn, could improve long-term outcomes.
12/27/2024 – The Unexpected Aftermath of CF-Related Liver Disease – This story has familiar themes. One, CF affects more organs than the lungs. Two, it is important to learn/understand your own body. Three, your life may turn out differently than expected.