Seven posts were made to the CFFC Facebook page during the week of 1/26-2/1/2025.
01/26/2025 – Work Forwards: Gemma’s career story – Gemma reviews the pros and cons self-employment as a CF mom.
01/27/2025 – How I encourage autonomy and self-empathy in my CF child – At some point (more likely, at various points), children with CF will resist treatment routines. This mother shares her approach to promote willing participation by her daughter.
01/28/2025– How I Found Community as a CF Spouse – The CF community has many parts. CF is the common thread, but each group has their own needs. This blog gives the perspective of a spouse.
01/29/2025 – Use of routine therapies in CF lower with Kaftrio (Trikafta): Study – It is not surprising that improvements achieved with CFTR modulators result in less need for typical CF treatments, but it’s always good to have formal studies to confirm personal observations.
01/30/2025 – Coping during lockdown, when you have CF – This blog is dated and was written to address the COVID pandemic, but the advice seems applicable to dealing with stress that can arise in life with CF from many sources.
01/31/2025 – James’s story: Candid thoughts on mental health resources – We have shared stories about the importance of access to mental health care. That applies to family and caregivers as well as those who have CF.
02/01/2025 – Prenatal CF treatment for intestinal blockage shows varying results – Per this article, meconium ileus is a complication in about 20% of CF births. This case study of three instances, where Trikafta was used after meconium ileus was identified by ultrasound, showed widely varying outcomes. This would indicate that broader analysis is needed