Seven posts were made to the CFFC Facebook page during the week of 2/16-22/2025.
02/09/2025 – “It felt like a part of me was taken away” – While this story ends with the promotion of a UK Cystic Fibrosis Trust fund-raiser, it is a story of how one person turned the grief of losing siblings to CF into a drive to help others living with the disease.
02/10/2025 – Cystic fibrosis damages the immune system early on – CFTR modulators improve lung clearance but they don’t mitigate another cause of lung damage.
02/11/2025 – Answering Tough Questions About CF – There’s plenty to do caring for the physical aspects of raising a child with CF; dealing with her/his mental health can be more challenging.
02/12/2025 – CFTR modulators need to lower sweat chloride levels, study finds – The sweat test is the recognized standard for diagnosing CF. This study shows that the sweat test is also an important measure for assessing treatment effectiveness.
02/13/2025 – “Stay curious, be persistent and don’t underestimate the power you have”: Celebrating International Women and Girls in Science Day – We missed the designated International Women and Girls in Science Day, but isn’t every day a day to celebrate women and girls in science?
02/14/2025 – CF Foundation Responds to the National Institutes of Health Announcement to Limit Funding for Indirect Costs – News stories can generalize the implications of government actions. Here is a statement from the Cystic Fibrosis Foundation that brings the change in NIH funding close to home.
02/15/2025 – Alexie’s story: Focusing on the here and now – Alexie’s story is not unusual. It’s a story or realization and adaptation. She also encourages donations to CF Canada which you can use as motivation to donate to your preferred charity.