Six posts were made to the CFFC Facebook page during the week of 3/30-4/5/2025.
03/30/2025 – Immune dysfunction found in CF children, even absent infections – This study was aimed at improving understanding of inflammation in children. There were some interesting findings regarding the effects of CFTR modulators.
03/31/2025 – Navigating My Son’s Sudden Pancreatitis – From the title, you can tell this blog is about digestive issues with CF. That said, it is also a story about the complexity of CF diagnosis.
04/02/2025 – UCLA team developing one-time, inhalable CF gene-editing treatment – CFTR modulators have proven effective but don’t work for everyone. That’s why continuing research on other options, like the gene therapy described in this article, is important.
04/03/2025 – I walk for my son and my sister – The little twist in this story is woman with a CF sibling is now a CF mom. Admittedly, the aim of the story is to encourage participation in CF Canada’s Walk to Make Cystic Fibrosis History. Perhaps you can use that inspiration to support Great Strides here in the States.
04/04/2025 – A deep dive into the future of CF care: Highlights from our MDT conference – The themes at UK’s Multidisciplinary Team Conference are familiar. It is good to see that CF caregivers around the world are focusing on the current and emerging issues faced by the CF community.
04/05/2025 – National Donate Life Month – The number of CF lung transplants have decreased with the advent of CFTR modulators; however, transplantation is still an important option for some. Liver and kidney transplants are also needed in the CF community. The linked article includes some resources you can share with family and friends to encourage them to register for organ donation