Seven posts were made to the CFFC Facebook page during the week of 6/1-7/2025.
06/01/2025 – $5M grant to support research in cystic fibrosis lung transplants – With the advances in CFTR modulator therapy, fewer people with CF are receiving lung transplants. That said, it remains important to improve the outcomes of transplantation.
06/02/2025 – The FatSecret App – Takes the Guesswork Out Of Every Meal – The South Africa Cystic Fibrosis Association suggests a phone app to help manage your diet and nutrition.
06/03/2025 – Investing in your research priorities: Trust announces £1.3m of new research funding – We have noted that CF-related research takes place around the world. This article identifies three research initiative funded by the UK’s Cystic Fibrosis Trust.
06/04/2025 – Meet Rida Viljoen: A Voice of Strength, Service, and Hope for the CF Community – CF took Rida to the brink; Trikafta pulled her back. She applies her reclaimed life to being an advocate, motivator, and mentor.
06/05/2025 – Brain training game offers new hope for drug-free pain management – Pain management can be an issue for people living with CF. It is unclear whether this research would apply to the sources of pain associated with CF, but it would be nice to entertain yourself and avoid opioids.
06/06/2025 – Why I Speak Up About My Mild CF – The presentations of CF vary widely, but even “mild” cases require constant attention.
06/07/2025 – Join the Research Study that can help advance new treatments for CF – Many people living with CF are unable to take advantage of CFTR modulators. The Cystic Fibrosis Foundation is recruiting participants for a study to advance therapies for this segment of the CF population.