Five posts were made to the CFFC Facebook page during the week of 6/22-28/2025.
06/22/2025 – My Journey Through Late Diagnosis – It seems improbable that a delayed CF diagnosis would occur in a family that had already dealt with CF. It’s a further reminder that, one, each case is unique and, two, diagnosis is complicated.
06/24/2025 – “Developments in medicines and treatments…allowed me more time instead to think about who I want to be” – Will’s story – Improved CF treatments have allowed people to explore more of what they can become. This blogger uses his career choice to heighten CF awareness.
06/26/2025 – My Ironman Journey With Cystic Fibrosis – Exercise is important in CF care. This man has taken that notion to an extreme.
06/27/2025 – 2024 Cystic Fibrosis Foundation Patient Registry Highlights – The CF Patient Registry contains a wide variety of data that not only shows the status of CF in the US but also highlights trends that guide treatment priorities. The 2024 summary contains several informative graphics.
06/28/2025 – Drugs that stabilize CFTR protein region may help manage CF: Study – CFTR modulators have brought great relief to many; however, they have not worked well for some. This study holds promise for some of those who have not benefited from modulators