Seven posts were made to the CFFC Facebook page during the week of 7/13-19/2025.
07/13/2025 – Final Budget Reconciliation Bill May Pose Challenges for People with CF – A significant segment of the CF community rely on Medicaid to finance their treatments. The Cystic Fibrosis Foundation provides an analysis of the impacts of the recently enacted budget reconciliation bill.
07/14/2025 – Caregivers cite information delays after CF newborn screening – Early diagnosis, early treatment, are keys to successful care for CF. This analysis discloses some issues that deserve further attention.
07/15/2025 – Exercise tips for CF from Physiotherapist Sue Naude – We know exercise is part of CF care. This physiotherapist offers insight on how to get the most out of your exercise regimen.
07/16/2025 – Understanding airway clearance techniques for CF – Most of our readers are probably familiar with the techniques presented in the article; however, it can be a refresher for the experiences and guidance for those new to the CF community.
07/17/2025 – My Journey With CF Across Generations – Raising a child with CF is difficult. The grief of losing a child to CF is unimaginable. And then to learn you have CF?
07/18/2025 – Join Us for CFFC Family Day 2025 – We are 15 days away from CFFC Family Day. This year’s event will be held on August 3rd at Wickham Farms from 10AM to 2PM. To be included on the CFFC guest list, complete the registration form on the linked page (Join Us for CFFC Family Day 2025).
Family Day is free to anyone in the Rochester/Finger Lakes CF community: people living with CF, their family and support network, and the CF care team. Admission gives you full access to all Wickham Farms activities and a meal from one of their concessions.
We look forward to seeing you on August 3rd!
07/19/2025 – I have a love-hate relationship with my port-a-cath – “Medical miracles” can come with some negatives, so it can take some effort to maintain a positive view of the device or treatment.