Six posts were made to the CFFC Facebook page during the week of 7/20-26/2025.
07/20/2025 – Pushing for global access to CF treatment – It can be easy to forget that the medications that have contributed to the progress in improving the lives of those with CF are not available to the entire CF population. This article presents the actions taken by a CF mom to address the affordability of CFTR modulators.
07/21/2025 – First patient dosed in BX004 trial for CF-related lung infection – This clinical trial (in Phase 2b) uses a cocktail of bacteriophages, or phages, that target Pseudomonas aeruginosa. Early results are promising.
07/22/2025 – My Experience with Bipolar Disorder and CF – It took courage – and respect for others with CF – for this woman to relate her story about the complications of CF drugs and mental health.
07/24/2025 – Dr. Dao Nguyen: Fighting Pseudomonas Aeruginosa in the Trikafta Era – In this article, Dr. Nguyen notes that it is harder to track infections in patients using CFTR modulators which presents a new challenge in finding effective treatments.
07/25/2025 – Join Us for CFFC Family Day 2025 – Last call for registration for CFFC Family Day August 3rd. Attendees list is due to Wickham Farms on 7/29. Check the linked article for details and an on-line registration form.
07/26/2025 – Millipedes make ants dizzy — and might soon treat human pain – Many people living with CF deal with chronic pain. Would you imagine they might get relief from millipedes?