Five posts were made to the CFFC Facebook page during the week of 8/24-30/2025.
08/24/2025 – “I felt so liberated and free” – Holly’s story – So, another link dealing with travel. This one is not so much advice, but the creativity used to travel with CF.
08/27/2025 – Managing school and CF – School season is upon us; some may already have started. The Cystic Fibrosis Foundation has prepared a series of guides for managing school and CF (such as, “When There’s More Than One Person With CF at School” and “A Teacher’s Guide to Cystic Fibrosis“). The link will take you to the CFF “Managing CF” page; scroll to the bottom of the page for the school guides.
08/28/2025 – In real world, Kaftrio seen to lower risk of CF liver disease progression – We know that CF affects organs other than the lungs, and we are learning the affect (if any) that Trikafta (Kaftrio in Europe) has on other organs. This study suggests that Trikafta may reduce the risk of liver disease, but the causal relationship needs more research.
08/29/2025 – Alice’s story: “I hope children with CF will be inspired to follow their own dreams” – As noted in the lead-in to this blog, “[e]veryone with CF is different.” However, you will probably find pieces that resonate with you.
08/30/2025 – Wearable patch could help CF patients manage disease at home – Although this study was limited to CF patients who were on CFTR modulators, the promise of remote monitoring of therapeutic status is good news; especially for those who have long travel times to their CF center.