Six posts were made to the CFFC Facebook page during the week of 5/10-16/2026.
05/10/2026 – Daily Treatment, Every Day – The title of the linked piece deals with treatments. Many people are aware of the range of daily treatments required for people living with CF. But on this Sunday in particular, awareness is also pointed to the role mothers play in managing treatments. [NOTE: You will have to log in to Facebook to see this article.]
05/11/2026 – Trikafta improves sinus issues in CF patients after lung transplant: Study – It has been a question whether lung transplant recipients would benefit from CFTR modulators. This study starts to answer that question but also calls for further study.
05/12/2026 – The healing power of storytelling has helped me make sense of the chaos – This column was inspired by CF Awareness Month. The writer notes that storytelling is one of the ways to raise awareness of the many aspects of CF.
05/13/2026 – This 800-year-old Chinese exercise helps lower blood pressure naturally – One aspect of CF awareness is understanding the changes in CF care due to longer life and new medications. According to the National Institutes of Health, “While historically associated with low blood pressure, CF patients now face higher risks due to increased survival, rising BMI, and decreased salt loss.” This article offers a solution without adding medicines to the daily routine.
05/14/2026 – “There is no one-size-fits-all when it comes to CF”: Emily shares her story – More and more people outside the CF community are aware of CF but many may not be aware symptoms and treatments vary widely. That said, this blogger points to a commonality; the resilience and adaptation of those living with CF.
05/15/2026 – Investment aims to advance pancreatic insufficiency treatment – People who take daily v/itamins or other routine medications may not be aware of the number of pills a person living with CF takes, including enzyme replacements for pancreatic insufficiency. This research holds the promise of reducing (a) the daily pill burden, and (b) reliance on pig-derived enzymes.