CFFC Facebook Posts Week of 4/21
Six posts were made to the CFFC Facebook page during the week of 4/21-27/2024. 04/21/2024 – Living in the In-Between – We tend to make
The other components of our Information resources connect you with static materials. The News component can be considered “current events.” Snapshots of the news posts are grouped by Facebook, Significant News, Clinical Trial Alerts and Announcements.
Summaries of CFFC Facebook posts are added to this site periodically for those who do not use Facebook. Our Facebook page offers daily (with a few missed dates) links to a wide array of news stories. Topics range from research news and CF-related science to personal stories and commentary. Announcements originating on this website may also be posted to Facebook.
Six posts were made to the CFFC Facebook page during the week of 4/21-27/2024. 04/21/2024 – Living in the In-Between – We tend to make
Seven posts were made to the CFFC Facebook page during the week of 4/14-20/2024. 04/14/2024 – Navigating the Emotions of Chronic Lung Rejection – Transplantation
Seven posts were made to the CFFC Facebook page during the week of 4/7-13/2024. 04/07/2024 – Study ID’s symptoms with biggest impact on life quality
Significant News
CFFC receives significant news through email or other sources not easily linked on Facebook. Other stories warrant broader discussion or provide new information resources.
CFFC is pleased to announce the return to Family Day – an event to bring the entire CF community together for fun and support. Thanks
The Cystic Fibrosis Foundation is asking for our assistance in their advocacy for important programs. Read their announcement below including links for contacting your legislators.
It’s easy to get bound up in the day to day business of managing your life with CF. Given the focus on the personal aspects
Clinical Trial Alerts
The Cystic Fibrosis Foundation issues periodic clinical trial alerts that announce trial seeking enrollment or report results. The alerts include links to sources with more detailed information on the trial.
CFFC received a request to share information regarding a clinical trial investigating phage therapy for treating Pseudomonas aeruginosa. The request came from Pranita D. Tamma,
Cystic Fibrosis Foundation issued three clinical trial alerts on 01/19/2023: two enrolling, one results Study to evaluate VX-522 in adults 18 years and older with
Cystic Fibrosis Foundation issued the following clinical trial alerts in October: October 3, 2022 Study to evaluate the standardizing of treatment for pulmonary exacerbations in
Announcements
Some news items are time sensitive such as announcements of survey opportunities and upcoming events (like Education Day or the Living with CF Golf Tournament). These announcements may also be distributed on our Facebook page and through our email newsletter. These posts are archived after the due date or event has passed, so there may be no entries shown.
Are you feeling lucky? Have you been perfecting your tee shot on par three holes? Put the two together and you can walk away with a nice prize at the
The Cystic Fibrosis Foundation has released more details about NextBreath 2023. Here are some excerpts from the Foundation. NextBreath is an online two-day event for people with CF who are
Now that the PGA Championship has moved out of town, we can turn our attention to the next big golf event in the area. The CFFC Living with CF Golf