Five posts were made to the CFFC Facebook page during the week of 1/29-2/4/2023.
01/30/2023 – How Family Relationships Have Grown Along With Day-to-Day Life – This story demonstrates the benefits from a strong and flexible family support system.
01/31/2023 – Financial Strain Is ‘Huge’ for Patients, Families in CF, Report Finds – This headline is probably not news to you. The key is raising awareness of this condition in the population outside the CF community. This study was done in the UK which has a different public health profile; however, the conclusions are relevant here.
02/01/2023 – How we’ve updated clinical guidance on CF diabetes (CFD) – The “we” in the article’s title refers to UK’s Cystic Fibrosis Trust. There is a link in the article for downloading a PDF version of the guidance. The guidance is issued to care providers in the UK; however, there is a lot of useful information in the document.
02/02/2023 – Confronting My Fear of a Lung Transplant Because of CF – Picking an aggressive form of treatment sounds easier to those not actually facing the procedure. This blogger explains the anxiety that can accompany consideration of the transplantation option.
02/03/2023 – Research Into Genetic Therapies – While the success of CFTR modulators has garnered a lot of attention, the promise of gene therapy also drives significant research. The Cystic Fibrosis Foundation has assembled information to augment your knowledge on all aspects of gene therapy.