Thanks to Pavilion School
CFFC recently received a generous contribution through the Girls Service League at Pavilion Central Schools. The League promotes Dress Down Fridays where faculty and staff pay for the right to […]
Clinical Trial – 3/26/15
The CF Foundation recently provided an update on the following research trial. Study of N91115 in people with cystic fibrosis ages 18 and older with two copies of F508del-CFTR mutation […]
CFFC Welcomes New Directors
CFFC is pleased to announce the election of two new directors to our board: Chrisanne Mansfield and Walt McCanna. Many of you may recognize Chrisanne as the head nurse on […]
Another Informative Kit Taylor Lecture
The 35th Kit Taylor Memorial Lecture was another in the long line of informative sessions. This year’s speaker, Dr. Joseph Pilewski from the University of Pittsburgh Medical Center UPMC), covered […]
Cystic Fibrosis Patient Assistance Foundation
Cystic Fibrosis Patient Assistance Foundation (CFPAF), a subsidiary of the Cystic Fibrosis Foundation, is a non-profit organization that helps people with CF afford the medications and devices they need to […]
New CF-Friendly Recipes Added to CFChef Online Cookbook
The following information was distributed in a press release from AbbVie: With the holiday season in full swing, people are scouring the internet for new recipes to impress their family […]
Transplant – A Personal Story
Lung transplantation has increasingly become a viable option in the long-term care for people living with CF. The road to transplant is not an easy one, emotionally as well as […]
Living with CF Golf Tournament
A cool and rainy start seems to be the standard for the CFFC golf tournament. But the challenging weather conditions did not deter the hearty golfers who came to play […]
CF Education Day a Success
May 31, 2014 was a gorgeous day – a great day to be in the park. The day was made even more spectacular by the local CF community present at CF […]
Paying It Forward
There’s no better feeling than making a child smile. That’s especially true when the child is dealing with all of the challenges of hospitalization. CFFC recently had the opportunity to […]