It’s easy to get bound up in the day to day business of managing your life with CF. Given the focus on the personal aspects of CF, you may lose sight of the fact that individuals are coping with this disease all around the world. Here’s an opportunity find how you fit in the global CF community.
Cystic Fibrosis Queensland recently released their Annual Report for 2023. You can read it here: CF Queensland Annual Report 2023. The release was accompanied by this statement:
This 2023 Annual Report provides a comprehensive overview of our performance throughout the year, highlighting key achievements, advocacy, challenges, and opportunities for the future. Next year, we turn 65. In July 1960, a group of concerned parents got together to discuss a world of possibility for their children. They were the founding members of our charity, which grew to become the Cystic Fibrosis Federation of Australia. As we look towards 2025 and our 65th birthday celebrations, Cystic Fibrosis Queensland remains future focused and positive, always looking forward to Embracing Tomorrow.
The report is an interesting read. It offers a view of the ways Cystic Fibrosis Queensland is supporting the CF community in their corner of the world. You will also find demographic data and notes on their research priorities. You will see a lot of similarities with the efforts being made in the US.
The report also contains information that may be useful as you educate family, friends, school staff, coworkers and others. The first section, “Overview of cystic fibrosis,” provides brief descriptions of the aspects of CF that most often come up when introducing others to the disease. The “CFTR Variant Classes” chart on page 60 is particularly helpful in understanding the diversity if presentation, symptoms and treatments.
We encourage you to take a look at CF Queensland Annual Report 2023