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CFFC Facebook Posts – April 2016

For those of you who don’t follow CFFC on Facebook, here are the original posts made to our page during April 2016.

04/01/2016Brothers with Cystic Fibrosis – Another personal story – this time, brothers.

04/03/2016Cystic Fibrosis Newborn Screening – The scariest time for parents – getting the results of newborn screening tests//

04/05/2016Healthy Attitude, Healthier Lungs – Inspiration for exercise from the CFF Community Blog.

04/08/2016I’ve Got Cystic Fibrosis – Charles Michael Duke – A musical approach to explaining life with cystic fibrosis.

04/10/2016New CF Guidelines for Treatment and Care of Preschoolers Issued with Aid of CF Foundation – From CF News Today

04/12/2016Life on the Transplant List – Transplant has become a more common option for people living with CF. Here’s one young woman’s story of the wait.

04/14/2016CF Researcher Mapping Disease at Molecular Level to Create Foundation for Tailored CareAn interesting follow up to the discussion at the 36th Annual Kit Taylor Memorial Lecture.

04/15/2016The Respiratory Therapy Song – Would you like singing RTs?

04/17/20165 Easy Ways to Make the Most Out of Hospital Stays – From the CFF Community Blog

04/18/2016 – Cystic Fibrosis Canada and Others Finance New Study of Experimental CF Drug by Laurent PharmaceuticalsFrom Cystic Fibrosis News Today

04/19/2016 – Living Today/Jordan – In this video produced by CFF, meet Jordan, a 22-year-old with cystic fibrosis whose biggest challenge is gaining weight. Watch to hear how through her love of studying nutrition, she’s able to overcome her fear of the inevitable: the feeding tube.

04/21/2016Financial Awards to Cover a Child’s Medical Needs Available Through UHCCF – A worthwhile read from Cystic Fibrosis News Today for anyone struggling with the cost of CF care (and who isn’t). UHCCF grants are available for US residents 16 years old or younger. There is a link to the grant criteria in the article.

04/23/2016 – Inspiring video, anything is still possible with Cystic Fibrosis – Natalie Woolf, 7-time world champion exhibition dancer and recipient of the Carl Alan Award, didn’t want to disclose her fight with cystic fibrosis (CF) for fear of not being judged on merit, but by pity. Now, changed by CF, she shares her journey with the world and invites each of us along.

04/24/2016Depression and CF – From CFF; depression is one more symptom of CF that cannot be ignored.

04/25/2016Elevated Acidity in Liquid Coating the Airways of CF Patients Linked to Viscous Mucus Production – From Cystic Fibrosis News Today, a study that could lead to more effective treatments to improve airway clearance.

04/26/2016Ricky’s Story: Lung Transplant for Cystic Fibrosis – Ricky was born with cystic fibrosis and needed a lung transplant. Learn how Kindred Hospital Houston Medical Center prepared Ricky for his lung transplant and helped save his life.

04/28/2016From Small Town to City Life: Reimagining Our Dreams – A reminder of the scope of change that can begin with a CF diagnosis.

04/30/2016#morethanCF: Time is on Your Side During Airway Clearance – Interesting results when the Cystic Fibrosis Foundation asked CFers how they pass the time during treatments.


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