CFFC Facebook Posts – April 2016
For those of you who don’t follow CFFC on Facebook, here are the original posts made to our page during April 2016.
04/01/2016 – Brothers with Cystic Fibrosis – Another personal story – this time, brothers.
04/03/2016 – Cystic Fibrosis Newborn Screening – The scariest time for parents – getting the results of newborn screening tests//
04/05/2016 – Healthy Attitude, Healthier Lungs – Inspiration for exercise from the CFF Community Blog.
04/08/2016 – I’ve Got Cystic Fibrosis – Charles Michael Duke – A musical approach to explaining life with cystic fibrosis.
04/18/2016 – Cystic Fibrosis Canada and Others Finance New Study of Experimental CF Drug by Laurent Pharmaceuticals – From Cystic Fibrosis News Today
04/19/2016 – Living Today/Jordan – In this video produced by CFF, meet Jordan, a 22-year-old with cystic fibrosis whose biggest challenge is gaining weight. Watch to hear how through her love of studying nutrition, she’s able to overcome her fear of the inevitable: the feeding tube.
04/21/2016 – Financial Awards to Cover a Child’s Medical Needs Available Through UHCCF – A worthwhile read from Cystic Fibrosis News Today for anyone struggling with the cost of CF care (and who isn’t). UHCCF grants are available for US residents 16 years old or younger. There is a link to the grant criteria in the article.
04/23/2016 – Inspiring video, anything is still possible with Cystic Fibrosis – Natalie Woolf, 7-time world champion exhibition dancer and recipient of the Carl Alan Award, didn’t want to disclose her fight with cystic fibrosis (CF) for fear of not being judged on merit, but by pity. Now, changed by CF, she shares her journey with the world and invites each of us along.
04/24/2016 – Depression and CF – From CFF; depression is one more symptom of CF that cannot be ignored.
04/25/2016 –Elevated Acidity in Liquid Coating the Airways of CF Patients Linked to Viscous Mucus Production – From Cystic Fibrosis News Today, a study that could lead to more effective treatments to improve airway clearance.
04/26/2016 – Ricky’s Story: Lung Transplant for Cystic Fibrosis – Ricky was born with cystic fibrosis and needed a lung transplant. Learn how Kindred Hospital Houston Medical Center prepared Ricky for his lung transplant and helped save his life.
04/28/2016 – From Small Town to City Life: Reimagining Our Dreams – A reminder of the scope of change that can begin with a CF diagnosis.