Six posts were made to the CFFC Facebook page during the week of 12/4-10/2022.
12/04/2022 – A self-powered ingestible sensor opens new avenues for gut research – Another article in the “not directly related to CF but interesting” category. Gut health is important to CF care, so there may be future application CF treatments.
12/05/2022 – Ayda’s story: “Kaftrio was a light at the end of the tunnel” – As shown in this story, success with CF requires a combination of treatments, support and persistence.
12/07/2022 – CF Foundation Urges Vertex Pharmaceuticals to Address Its Decision to Decrease Copay Assistance for People with Cystic Fibrosis – In its advocacy role, the Cystic Fibrosis Foundation has issued a statement asking Vertex to reconsider the plan to reduce its assistance to for CFTR modulators and other medications.
12/08/2022 – Copay accumulators are coming for people with cystic fibrosis – Yesterday’s post shared CFF’s position on the proposed reduction in copay assistance. Today, we share Gunnar Esiason’s in depth analysis of the situation. A long, and complex, read that may help you in assessing your insurance options.
12/09/2022 – The Unpredictability of CF Taught Me How to Let Go – Early on, you learn that CF is unpredictable. It takes a bit longer to learn how to deal with it.
12/10/2022 – CF STORM trial extends recruitment window as recent evidence shows promise for reducing treatment burden – It’s interesting to see a UK organization report on a trial in the US. An important trial hoping to reduce the the amount of meds in the daily routine.