Seven posts were made to the CFFC Facebook page during the week of 3/5-11/2023.
03/05/2023 – How does cystic fibrosis affect the body? Want quick facts on how CF manifests in different body parts? This resource from Cystic Fibrosis Trust has interactive body graphics (one female, one male) give you a quick look at how CF affects selected body part by clicking on the related image in the graphic. The graphic is supplemented with more detailed descriptions and downloadable fact sheets.
03/06/2023 – Dreams can come true: The first year of parenthood – Parenthood is becoming a more common aspect of life with CF – and all the joy that comes with it.
03/07/2023 – One round of airway clearance therapy leads to lung function gains – The impact of CFTR modulators has prompted the review of CF treatments. This study investigated the continuing value of airway clearance therapy.
03/08/2023 – What I Didn’t Expect About Transitioning From Pediatric to Adult CF Care – The transition from pediatric to adult care requires building relationships with a new care team. It can be a difficult time. This blogger shares her experience and the steps taken by her CF center to mitigate the anxiety of transition.
03/09/2023 – Cystic Fibrosis Canada Releases Canadian CF Registry 2021 Annual Data Report – Like the Cystic Fibrosis Foundation, Cystic Fibrosis Canada maintains a registry of known residents living with CF. If you like data, this report will give you a glimpse of how people are faring in Canada. The article includes highlights and a link to the full report.
03/10/2023 – Living life as a PWCF: On the path to my forever home – This story covers one of the “normal” things in life (buying a house) that comes with extra hurdles when you have CF.
03/11/2023 – Trikafta boosts production of immature CFTR protein, study finds – Variations is CF symptoms and responses to treatments were quite puzzling until the discovery of the wide range of CFTR mutations. Now that variation is being seen in the response to Trikafta.