Seven posts were made to the CFFC Facebook page during the week of 1/12-18/2025.
01/12/2025 – Ndumiso’s Story (part 1 of 2) – First segment of a two-part story. One take away is the reminder that CF’s classification as a rare disease can be even more dramatic in other parts of the world.
01/13/2025 – Ndumiso’s Story (part 2) – Second segment of a two-part story. Another take away is the realization that the challenges presented by CF can be more critical when the care center is a great distance away, and across your country’s border.
01/14/2025 – CF Fighter Care Package – Check out this offer from the Western New York Chapter of the CF Foundation.
01/15/2025 – James and Leroy: A Journey of Hope and Advocacy in the Face of Cystic Fibrosis – A story of significant CF challenges that led the father to get involved in community advocacy.
01/16/2025 – New research into methods to find out the effects of treatments: Why it matters – Researchers are mining data in the UK CF Registry to get insight into long-term effects of treatments and other aspects that may not be available in shorter-term clinical trials.
01/17/2025 – Facing Mortality: My Journey Through CF, Addiction, and Recovery – We’ve said before that CF doesn’t exempt you from problems that affect the rest of the population. As this story shows, dealing with CF may make you more susceptible to mental health problems.
01/18/2025 – Kaftrio (Trikafta) lowers bacteria levels in lungs over 1 year: Study – Reports of the benefits of Kaftrio/Trikafta focus on the ability to more easily clear mucus from the lungs. Whether it is a direct effect, or a side effect of mucus clearance, this study found a decrease in bacterial colonization.