Seven posts were made to the CFFC Facebook page during the week of 1/15-21/2023.
01/15/2023 – Why Walter White of ‘Breaking Bad’ Is Relevant to the CF Community – Here is a unique take on the rising concerns over the change Vertex has made in its assistance program.
01/16/2023 – A Case of Imposter Syndrome in the CF Community – Emotions in the CF community are varied and complex. This blog explores the feelings that arise from the inevitable comparisons to others in the community.
01/17/2023 – First Patient Dosed in Trial of Phage Therapy for Lung Infections – The promise of phage therapy is moving from concept to clinical trial.
01/18/2023 – NICE appraisal of modulator therapies – Funding of medications is more expansive in the United Kingdom so it’s not surprising that their National Health Service is looking for data to support the benefits of CFTR modulators. This article describes the process; we’ll be interested in the conclusions drawn form the collected data.
01/19/2023 – Why I Wish Mask Mandates Were Still in Place – Other issues have pushed COVID (and the related health safety measures) out of the headlines. Yet protection against airborne infection continues to be – and always has been – a concern for people living with CF.
01/20/2023 – CF Foundation Reflects on Progress Toward Equity, Racial Justice, Diversity, and Inclusion – We have shared stories of the additional hurdles faced by individuals who don’t match the “normal” CF image. The CF Foundation has been working to overcome those hurdles.
01/21/2023 – How I Beat Burnout as a Cystic Fibrosis Parent and Caregiver – A full day – every day – can generate an additional layer of stress. This blogger offers some ideas for overcoming the challenges of CF parenting.