Seven posts were made to the CFFC Facebook page during the week of 1/21-27/2024.
01/21/2024 – How I Trained My CF Service Dog to Detect Bacteria – If you love dogs (and have the patience to train her/him), you may have a diagnostic too as well as a furry friend.
01/22/2024 – Stopping dornase alfa while on Trikafta may save $1B – The cost of CFTR modulators has been an issue for eligibility under some insurance programs. This study suggests a strategy to demonstrate the reduction in total cost of all prescriptions when analyzing affordability.
01/23/2024 – “The positivity I have had throughout my life has helped me immensely in achieving my goals.” Alex’s story – Alex’s story is has a lot of common theme’s. He credits his ability to maintain a positive attitude as a major factor in overcoming the challenges of life with CF.
01/24/2024 – New medicine can create a new life for diabetes patients — without needles! – While this new approach to CF-related diabetes is a few years away, it seems like the benefits will be worth the wait. The article identifies other benefits beyond eliminating the need for injections,
01/25/2024 – Patient advocacy is crucial during hospital admissions – You can’t say it too often: advocating for yourself is a critical skill for maintaining your mental as well as your physical health.
01/26/2024 – Cystic Fibrosis Foundation Funds Up to $15 Million to Prime Medicine to Pursue Gene Editing in CF – This announcement is consistent with the commitment of the Cystic Fibrosis Foundation to find treatments that are independent of particular CFTR mutations.
01/27/2024 – Lorena’s story: Art and CF – This story reminds us that CF doen not control an individual’s range of talents nor the choices of what to do with those talents.