Six posts were made to the CFFC Facebook page during the week of 1/25-31/2026.
01/26/2026 – 9 tips on managing healthcare expenses for people with CF – Some or all of these tips may be familiar to you, but it never hurts to see what others have to say about covering the costs of life with CF. The link includes a short video (a little more than four minutes) and a transcript of the video.
01/27/2026 – Dr. Justine Mathe: The Hidden World of Bacteria – Despite the advances like the CFTR modulators, research to find better ways to battle bacterial infections is critical work.
01/28/2026 – This discovery could let bones benefit from exercise without moving – According to the Cystic Fibrosis Foundation: “Since people with CF can have low bone minerals, they are at risk for osteopenia. In CF, it can happen at any age but becomes more common in the later teen and adult years.” The research discussed in the linked article may offer help in building stronger bones.
01/29/2026 – The Power of Community: When Care Becomes a Chorus – While this story has a happy ending, the two-year saga is heart breaking. It is an unfortunate reality that this story is not unique.
01/30/2026 – Tiny vesicles boost delivery of fat-soluble vitamins to CF patients: Trial – Vitamin deficiency can be a problem for some people Living with CF. This research points to an alternative approach that may improve vitamin absorption, but there are some other effects that seem to mitigate the good news.
01/31/2026 – “I knew I’d achieved the feat, and had done it with CF” – Andrew’s story – Another story of person living with CF who pushed the limits to accomplish a feat many people (with or without CF) could manage. He does acknowledge that he has benefited from CFTR modulators.