Six posts were made to the CFFC Facebook page during the week of 1/5-11/2025.
01/05/2025 – Living with Cystic Fibrosis: Urte shares her story on Rare Disease Day – A story that is quite familiar – delayed diagnosis, efforts to avoid infection – with the striking difference that CFTR modulators are not available in their home country of Lithuania.
01/06/2025 – We Demand Access for All – We are familiar with the “inequity” in the eligibility for CFTR modulators based on mutation type. This article from South Africa is a reminder that access to financial assistance introduces another inequity.
01/08/2025 – Some days, my chronic illness wins – A lot is written about the physical effects of CF. This blog gives a good look inside some of the mental health issues faced by the CF community.
01/09/2025 – Exploring the eco-friendly future of antibiotic particles – Have you heard of silver nanoparticles? Apparently, they are critical elements in the development of antibiotics. This research identifies an organic source for silver nanoparticles.
01/10/2025 – How I Fought for Answers About My Health – We have shared stories of delayed CF diagnosis. This story is a twist on the theme with an early diagnosis followed by an “un-diagnosis” and years before an accurate diagnosis lead to appropriate treatment began.
01/11/2025 – ACT, therapy aiming at adjustment, seen to aid mental health with CF – More attention is being paid to mental health is CF. Beyond identification, this study looked at finding more effective approaches to managing mental health issues.