Seven posts were made to the CFFC Facebook page during the week of 10/18-24/2026.
10/18/2026 – CF treatment may reverse pancreatic damage in young children – The advances in CF treatments have been considered address symptoms going forward without correcting existing conditions. This report from Vertex indicates that Alyftrek may restore pancreatic function.
10/19/2026 – Questions to Consider Asking Candidates About Issues Impacting People with CF – Early voting in New York starts on October 24th. Many considerations go into the selection of candidates; some are specific to people living with CF or other chronic diseases. Without promoting specific candidates, the Cystic Fibrosis Foundation has prepared a set of questions to learn candidates’ positions that may impact life with CF. You may not be able to address the questions directly to candidates but it can be a guide in researching positions.
10/20/2026 – Dr. Justin Di Trani: Coming together to tackle lung infections – Even with the advances in treatments, Pseudomonas aeruginosa remains a problematic infection for people living with CF. This article describes a new research approach being taken in Canada.
10/21/2026 – Living long enough to need medication for high cholesterol – Like treatment with CFTR modulators, lung transplantation produces significant changes in the recipient. As this writer points out, those changes are psychological as well as physical.
10/22/2026 – A gene discovery that changed cystic fibrosis care, and genetic research, forever – Neonatal genetic testing, CFTR modulators, personalized treatments, etc. are part of our understanding of CF today. These were all made possible by the identification of the CFTR gene in 1989. This article tells the story chain of events stemming from this discovery.
10/23/2026 – Meet Bradley, a Toronto-based artist who has spent much of his life balancing two important parts of who he is: music and cystic fibrosis – You can’t get enough stories of how individuals use their passion to get through their lives with CF.
10/24/2026 – New data shows tough reality of living with cystic fibrosis – Cystic Fibrosis Trust has released their analysis of the data in the UK’s CF Registry through 2025. Through this brief introduction links to PDF’s for the detailed report (108 pages) and a graphic summary (4 pages). The reports present some interesting insights on the current state of life with CF.