Six posts were made to the CFFC Facebook page during the week of 10/19-25/2025.
10/20/2025 – Not your doctor, but AI can be integrated into management of CF – There is a lot of chatter about the pros and cons of artificial intelligence (AI). As AI finds its way into medical care, this analysis is useful for guiding your approach.
10/21/2025 – “I had so much life ahead of me and no idea what to do with it” – Caitlin’s story – This woman takes “being open” about her CF to new heights – putting her story in her final performance for her MA in Theater.
10/22/2025 – Your guide through open enrollment –You are probably aware that the status of health insurance is up in the air. Here is a timely message from the Cystic Fibrosis Foundation: “Open enrollment is your chance to make sure your health insurance works for you — but it’s not always as simple as sticking with the same plan. It’s easy to assume that if you’re not switching plans, nothing has changed. But that’s rarely the case. Each year, coverage, costs, and provider networks can shift — sometimes in ways that only show up when you need care. That’s why it’s essential to review your open enrollment options as soon as you get them. A one-on-one conversation with a Compass case manager can help you understand what’s new, spot potential gaps, and make sure your or your child’s needs are covered in 2026. Get help by calling 844-COMPASS (1-844-266-7277) to speak with a dedicated case manager or email us at compass@cff.org.”
10/23/2025 – Alyftrek: Your Questions Answered – Trikafta isn’t the only triple combination CFTR modulator. This article gives some background on Alyftrek.
10/24/2025– Not just a seat at the table: Patient advocacy needed in CF research – This writer offers several reasons why advocacy by, and inclusion of, people living with CF is crucial to shaping CF care.
10/25/2025 – Latest cystic fibrosis data highlights realities of the lifelong condition with no cure – This brief summary of the data in the CF Registry report from UK’s Cystic Fibrosis Trust gives the balanced view of life with CF today: a lot of progress has been made but there is still a lot of work to be done.