Seven posts were made to the CFFC Facebook page during the week of 10/5-11/2025.
10/05/2025 – Survey Opportunity – Exocrine Pancreatic Insufficiency – Survey closed 11/1/2025. Pillar Patient Advocates is currently assisting with a paid research opportunity for adults diagnosed with Exocrine Pancreatic Insufficiency (EPI) who are currently taking Pancreatic Enzyme Replacement Therapy (PERT). The study will conclude in mid-October. If you are are interested, you should register soon using the link in the announcement.
10/06/2025 – My Experience with Disordered Eating on Trikafta – Trikafta brings about significant changes; not all of them are good. This story relates the difficulty in adjusting one’s diet to meet the new nutritional requirements with Trikafta use.
10/07/2025 – My late sister’s birthday prompts reflection on being siblings with CF – Even when siblings have CF, their experiences can be very different. This blog has interesting insights into the ups and downs of siblings with CF.
10/08/2025 – Nanotech transforms vinegar into a lifesaving superbug killer – Researchers continue to look for new and creative approaches to treat bacterial infections. This one may appeal to fans of natural medicine.
10/09/2025 – Being Diagnosed with CF After Decades of Symptoms – There are several negatives to a long-delayed CF diagnosis, but this blogger shows us that receiving the diagnosis in middle age allows you to process the news more constructively.
10/10/2025 – A CF patient advocate’s mission is to improve clinical trials – People living with CF are the beneficiaries of research and clinical trials. This individual is “returning the favor” by educating and promoting research participation.
10/11/2025 – MIT’s new precision gene editing tool could transform medicine – Gene therapy holds the promise of “cure” for CF regardless of the individual’s mutation. This research creates a path for more effective – and safer – gene therapy.