CFFC Facebook Posts Week of 11/10

Six posts were made to the CFFC Facebook page during the week of 11/10-16/2024.

11/10/2024“Our hope for our boys’ future is that CF does not define them”: Mum Rebecca shares her festive wish – Receiving a CF diagnosis is tough; doubly so when you already have a child with CF.

11/11/2024Hair-like structures that clear mucus found abnormal in cystic fibrosis – The difficulty people living with CF have with clearing mucus from their lungs is commonly attributed to the thickness of the mucus. This study demonstrated that abnormal functioning of the cilia also contributes to the problem.

11/11/2024Hair-like structures that clear mucus found abnormal in cystic fibrosis – The difficulty people living with CF have with clearing mucus from their lungs is commonly attributed to the thickness of the mucus. This study demonstrated that abnormal functioning of the cilia also contributes to the problem.

11/12/2024How I Navigate CF Across the Pond – We have shared stories from the CF community in the UK. This story has a twist: a US citizen who relocated to the UK to address health insurance issues.

11/13/2024CF research update: What is the ‘vanza triple’ modulator? – Even with the success of Trikafta (Kaftrio in Europe), research continues to find more effective CFTR modulators.

11/15/2024The Current Hospital Help Program – In May, CFFC revised our Hospital Help Program to change the way this benefit is provided to those who are dealing with hospitalization. The linked article explains the current program in more detail.

11/16/2024Pseudomonas bacteria in CF lungs raise risk of failure after transplant – Although lung transplantation provides a fresh start, the threat of Pseudomonas can persist.