Seven posts were made to the CFFC Facebook page during the week of 11/2-8/2025.
11/02/2025 – Scientists just made gene editing far more powerful – Last month we shared an article on the work at MIT to improve genetic editing. This article reports on gene editing research at The University of Texas at Austin that will focus on correcting CFTR mutations.
11/03/2025 – I Still Struggle with Health Disparities That Affect My CF Care – This story deals primarily with one person’s struggle with paying for health care. The story links to a recording of the third plenary session of 2025 NACFC which deals with the disparities in care across the CF community. The presentation is about 1 hour (after 30 minutes of award announcements). The presentation is eye-opening; especially in light current pressures on financing health care and defunding of research that addresses ethnic issues.
11/04/2025 – ARCT-032 well tolerated in CF trial with early positive signs – The search continues for mucus-clearing treatments for those who do not benefit from current CFTR modulators. This article reports positive indications with a note about possible side effects.
11/05/2025 – Male fertility and CF: Dan, Sean and Matthew share their stories – With the aging of the CF population, a lot of information has been shared about childbearing for women with CF. This article has three stories that highlight the difficulties faced by men with CF who want to father a child.
11/06/2025 – Dr. Fabrice Jean-Pierre: Uncovering the Invisible Battles in CF Lungs – Even with the progress gained with CFTR modulators, lung infections remain a serious issue for people living with CF. Dr. Jean-Pierre’s research looks at bacterial communities – not just an individual bacteria – and uses this perspective to investigate new uses for existing drugs.
11/07/2025 – Our Experience with Trikafta and Mental Health – This mom’s story presents three important truths: (1) Trikafta isn’t a “miracle drug” for everyone, (2) “mental health is healthcare too,” and (3) despite similarities, every CF story is unique.
11/08/2025 – Dual-action therapy for cystic fibrosis shows promise: Study – The compound discussed in this article is a long way from being available as a treatment. It is worth noting that the search for a dual-action therapy is intended to reduce the therapy burden and avoid adverse drug interactions.