Seven posts were made to the CFFC Facebook page during the week of 12/29/2024-1/4/2025.
12/29/2024 – Virus that threatened humanity opens the future – More basic research that may provide a benefit to CF gene therapy.
12/30/2024 – Finding Strength in the CF Community – We can never share to many stories that highlight the importance of a support system for those living with CF. This mom found the most meaningful support from those who had already faced the challenges.
12/31/2024 – A New Era of CF Care: Possible Future Changes – The Cystic Fibrosis Foundation has provided guidance to CF centers to meet the evolving needs of the CF community. Reviewing that guidance may suggest topics you would like to discuss with your care team.
01/01/2025 – Happy New Year – Standing on the brink of a new year provides an opportunity to look back at how much has been accomplished and look ahead to the goals yet to be achieved. May the appreciation of how far we have come give us the energy to push forward. Until it’s done!
01/02/2025 – System to auto-detect new variants will inform better response to future infectious disease outbreaks – This new approach was developed for viruses and bacteria that impact the general population (and the CF community), but may be applied to track changes in infections that significantly affect those living with CF.
01/03/2025 – Story from a CF teen – A short story from the other side of the world. Despite the distance there are common themes in life with CF.
01/04/2025 – FDA approves Alyftrek, once-daily triple-combination therapy for CF – The search for more effective CFTR modulators continues. This latest combo increases the pool of eligible mutations, but also comes with an advisory on liver health.