Six posts were made to the CFFC Facebook page during the week of 12/3-9/2023.
12/04/2023– Inside the lab with CF researcher Hollie– This article, including a video, describes an area of research to build clinical test models that more accurately replicate the conditions in CF lungs.
12/05/2023 – BX004 phage therapy improves CF lung function: Top-line trial data – Promising results in a treatment alternative for Pseudomonas which is resistant to antibiotics.
12/06/2023 – CF Can’t Stop Me From Doing What I Love – “Growing up” is learning how to handle challenges so they don’t get in the way of your dreams.
12/07/2023 – Protective cell layers differ between upper and lower airways – This research has two interesting results. One, the benefit of “growing” cells to test the effectiveness of a specific treatment. Two, nasal cells do not have the same reaction as bronchial cells to Orkambi.
12/08/2023 – “I think my biggest piece of advice is talking about CF, but also realising that you can do more than you might think” – Isobel, 23 – In her story, Isobel says she has been very lucky. That doesn’t mean she has not had to overcome challenges.
12/09/2023 – CF Foundation Grateful for Continued Access to Trikafta in Colorado After Prescription Drug Affordability Board’s Ruling – FDA Approval is not the only hurdle in gaining access to CFTR modulators and other CF drugs. This release from the Cystic Fibrosis Foundation notes that their advocacy has expanded to include state affordability boards.