Six posts were made to the CFFC Facebook page during the week of 12/31/2023-1/6/2024.
12/31/2023 – Using AI, researchers identify a new class of antibiotic candidates – While this article focuses on the clinical approach, it holds good news on potential advancements in the treatment of MRSA.
01/01/2024 – New Year’s Resolutions for the Chronically Ill – Happy 2024!! This article first appeared on January 6, 2022. We missed it back then, but it is still relevant today.
01/02/2024 – What You Need to Know: Prescription Drug Affordability Boards and People with CF – New York has a “[d]rug utilization review boards… that ha[s] authority to negotiate how much the state pays a manufacturer for a prescription drug” This may be an advocacy issue to keep an eye on in 2024.
01/03/2024 – For the record, I’m a person with a disability, not an unable person – This blog is geared toward people living with CF, but the sentiment can be applied eqaully to other circumstances carry a disability label.
01/04/2024 – Learning to Take Charge of My Health as a Young Adult With CF – This blogger talks about the difficult migration from child to adult with CF with bits of advice to parents to help prepare their sons and daughters for the transition.
01/06/2024 – Kaftrio restores pancreatic function in 2 women with milder mutation – This study had a very narrow focus; however, it points to (a) the effect CF has on other organs beyond the lungs, and (b) need to fully understand the impact of CFTR modulators.