Seven posts were made to the CFFC Facebook page during the week of 12/7-13/2025.
12/07/2025 – Overcoming Medication Anxiety – With the warnings that follow pharmaceutical commercials, it is easy to be wary of new medications. This blogger shares her slow acceptance of Pulmozyme.
12/08/2025 – Scientists keep a human alive with a genetically engineered pig liver – Despite the decline in lung transplantation in the CF community, organ transplants remain an important option. This study indicates a potential path to address the shortage of donor organs.
12/09/2025 – Five things you’ll only get if you’re a parent of a child with CF (the festive edition) – One parent’s take on celebrating the holidays when you have a child living with CF.
12/10/2025 – CF and GERD: Understanding the connection – This article begins with a statement we often make here: CF is more than just a lung disease. The article discusses reflux and offers some tips for managing GERD.
12/11/2025 – Holding onto Hope: A Newly Diagnosed Family’s Journey with Cystic Fibrosis – There are many emotions that come with the CF diagnosis of a newborn. The learning process is a mix of learning the advances in treatment and recognizing the complications that remain.
12/12/2025 – Safety concerns halt BX004 phage therapy trial for CF infection – There are a couple of important messages in this article on the cancelation of a clinical trial. One, not all efforts to improve treatments are successful. Two, patient safety is a critical element in clinical trials.
12/13/2025 – What I Wish I Knew Before Moving with Cystic Fibrosis – Relocation, and other life changes, can be more complicated when the household includes someone living with CF. Some of the complications noted in this story could also arise with a job change without a relocation