Six posts were made to the CFFC Facebook page during the week of 2/11-17/2024.
02/11/2024 – How It Feels to See CF on Screen – A filmmaker with CF shares her observations on the portrayal of CF in movies.
02/12/2024 – New home diagnostic kit for Pseudomonas aeruginosa under development, following initial research funded by the Trust – Here’s some research to keep an eye on. Two key elements: early detection and non-invasive.
02/13/2024 – Medicine side effects nearly broke me, but I overcame them – A story that is familiar to many who take a variety of medications to maintain their health. As you will see, the author didn’t so much “overcome” the side effects as survive them.
02/14/2024 – CF Research Update and Live Q+A – From the Cystic Fibrosis Foundation: “Genetic therapies, including RNA therapy and gene therapy, have the potential to work for any person with cystic fibrosis, including people with nonsense and rare mutations. Join us for a webinar February 21 at 7 p.m. ET to hear from CF Foundation staff Kara Foshay, PhD, and Katie Howe, to learn about genetic therapies in CF, starting from the basics. This event will be moderated by Medora Frei, an adult with CF, and attendees will have the opportunity to ask questions during a live Q+A.” Click the link to register.
02/15/2024 – Lily and Will’s story: The mental toll of CF – A partner’s view of supporting a life with CF, particularly the mental health aspects, sprinkled with observations on what worked for this couple.
02/16/2024 – IL-8, markers may predict worsening bronchiectasis in CF – The true benefit of reliable predictive markers is the ability to apply treatments that will mitigate the condition.